Balancing sleeping with guardianship: narratives of sleep during informal dementia care

Autor: Rosemary Gibson, Amy Helm, Isabelle Ross, Philippa Gander, Mary Breheny
Rok vydání: 2022
Předmět:
Zdroj: International Journal of Care and Caring. :1-16
ISSN: 2397-883X
2397-8821
DOI: 10.1332/239788221x16613777827869
Popis: Sleep has been recognised as compromised in dementia care. This study aims to represent the experiences and needs of informal carers via sleep-related accounts. Retrospective interviews were conducted with 20 carers concerning sleep changes across the trajectory of dementia care. Key interactive narratives were around: ‘sleep as my sacrifice’; tensions between identities of being a ‘sleeper’ versus ‘guardian’; and ‘sleep as a luxury’. Maintaining healthy sleep and preferable sleep practices is challenging while balancing the responsibilities of dementia-related care. Acknowledging sleep as a sociological practice enables a greater understanding of carers’ nuanced experience and support needs.
Databáze: OpenAIRE