| Popis: |
Background Approximately 2,500 people with learning disabilities are in inpatient settings in England (National Audit Office (NAO), 2017) which may restrict their ability to live a normal life (Head et al, 2018) and increase the risk of being exposed to abuse and mistreatment (BBC, 2011). The yearly cost of inpatient care for people with learning disabilities is estimated to be approximately £115,000 per person more expensive than community living (NAO, 2017). Significant funding has been provided to Transforming Care (TC) since 2012 to move people with learning disabilities out of inpatient settings. However, there is limited evaluation of TC, with a lack of research focused on the perspective of service-users and what helps people to sustain community placements. Aims The aim of this study is to understand the perspective of an often marginalised and discriminated group by conducting longitudinal semi-structured interviews with people with learning disabilities who have moved out of hospital through TC. The study will examine the impact on well-being of living in the community and identify the key factors that support and undermine the ability to sustain community living over time. Methods The methodology will be based on Grounded Theory. 27 people who have moved under the TC programme will be recruited from 2 NHS services and 1 health and social care service. After consent is established, two interviews will be conducted with each participant, the first on their own, and the second either on their own again, or with their KSP if they choose to have one. Data will be analysed beginning with line by line coding and progressing to focused coding. One year later, participants will be re-contacted, consent reassessed and participants asked to take part in two further interviews to explore changes over the preceding year. Data analysis will continue to a more conceptual level and a theoretical model developed to vividly describe experiences of community living, explore well-being and understand the complex interaction of factors over time that support the ability to sustain community living. Timelines for delivery The study will take place over 3 years. Results from initial data analysis will be available on our website ‘Making Positive Moves’ after 12 months, and the final theoretical model available from 30 months. Best practice guidelines, training materials and publication in peer reviewed journals will be produced in the final year, culminating in a national conference in month 36. |
