Facing Loss and Finding Hope in Narrating Together: Accounts of Parenthood Following the Death of a Child to Muscular Dystrophy
| Autor: | Lizette Nolte, David Wellsted, James Randall |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
030506 rehabilitation
medicine.medical_specialty Health (social science) 030504 nursing Sociology and Political Science media_common.quotation_subject Face (sociological concept) medicine.disease Mental health 03 medical and health sciences medicine Grief Narrative Muscular dystrophy 0305 other medical science Psychology Psychiatry media_common |
| Zdroj: | Illness, Crisis & Loss. 30:689-708 |
| ISSN: | 1552-6968 1054-1373 |
| DOI: | 10.1177/10541373211013719 |
| Popis: | Muscular dystrophy is a terminal muscle-wasting condition, whereby families face continuous challenges as their child’s health deteriorates. This research explored accounts of parenthood following bereavement of their child to muscular dystrophy. Narrative inquiry was used to analyse interviews with four couples. Findings suggest an importance in narrating adversities ( waking up to different futures) and positive influence ( creating legacies). The research highlighted how humour is often used to support others to witness painful accounts ( humour through the struggle). Parents appeared to co-regulate the painfulness of narrating loss ( storytelling together). Further research is needed on conjoint narrative interviews and how these may enable participants to address shared loss experiences. Practitioners who support bereaved parents could consider the potential value highlighted in this study of meeting with parents conjointly, which include that, through co-regulatory, collaborative processes, families seemed to be supported to reach narrative cohesion, sensitively and safely, when facing loss and bereavement. |
| Databáze: | OpenAIRE |
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