Palliative care and end of life management in patients with idiopathic pulmonary fibrosis

Autor: Assunta Micco, Emanuela Carpentieri, Antonio Di Sorbo, Alfredo Chetta, Mario Del Donno
Rok vydání: 2023
Předmět:
Zdroj: Multidisciplinary Respiratory Medicine. 18
ISSN: 2049-6958
1828-695X
DOI: 10.4081/mrm.2023.896
Popis: Idiopathic pulmonary fibrosis (IPF) is a chronic disease with an unknown etiology that causes deterioration of the structure of the lung parenchyma, resulting in a severe and progressive decline in respiratory function and early mortality. IPF is essentially an incurable disease, with a mean overall survival of 5 years in approximately 20% of patients without treatment. The combination of a poor prognosis, uncertainty about the disease's progression, and the severity of symptoms has a significant impact on the quality of life of patients and their families. New antifibrotic drugs have been shown to slow disease progression, but their impact on health-related quality of life (HRQoL) has to be proven yet. To date, studies have shown that palliative care can improve symptom management, HRQoL, and end-of-life care (EoL) in patients with IPF, reducing critical events, hospitalization, and health costs. As a result, it is essential for proper health planning and patient management to establish palliative care early and in conjunction with other therapies, beginning with the initial diagnosis of the disease.
Databáze: OpenAIRE