021 Advance care planning - development of a group intervention for people with newly diagnosed dementia and their families
| Autor: | Gillian Horne, Lorna Grey, Emily Madsen |
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| Rok vydání: | 2013 |
| Předmět: | |
| Zdroj: | BMJ Supportive & Palliative Care. 3:A8.2-A8 |
| ISSN: | 2045-4368 2045-435X |
| DOI: | 10.1136/bmjspcare-2013-000591.21 |
| Popis: | Background Rowcroft Hospice’s strategic aim is ‘taking care further’. This includes providing greater access to services and end of life care for people with non-cancer diagnoses. Working with Devon Partnership NHS Trust an intervention was developed to offer people post diagnosis with dementia, and their families/carers in South Devon. The ‘Planning Ahead’ session is delivered as part of a ‘Memory Matters’ course. Aim 4 weekly 2 hour sessions for those recently diagnosed with dementia and carers. Informal introduction to advance care planning - focus on changing ability to communicate and make decisions in the future. Provision of information about the legal framework and support tools. Promote choice – place of care, preferences, hopes and wishes, nature of medical intervention etc. Provide a supportive and safe group to explore these issues. Approach An informal psycho-education group. The use of group discussion enables individuals to talk about personal experiences/concerns. This facilitates the sharing of information and literature specific to planning ahead. We used mixed media including: video clips, hand-outs, power point, local and national booklets. Outcomes Initial evaluation by participants: Improved understanding about decision making in the event of changes in communication/capacity. These conversations are difficult to have/or start in families without support. Peer support/normalising effect of the group has been helpful. Observations of facilitator: Shared opportunity to start difficult conversations. Carers empowered to consider their own preferences and wishes – the universal relevance of planning ahead for all. Individuals with dementia who attend need support to participate and encouragement to be involved. Carers/family members can dominate. Application Advance Care Planning is a cornerstone of Specialist Palliative Care. Developing bespoke ways to meet the varying needs of different patient groups and their families is essential. |
| Databáze: | OpenAIRE |
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