Parent Perspectives of School/Daycare Experiences in Young Children Newly Diagnosed With Diabetes
| Autor: | Alexa Stern, Brenda Duran, Randi Streisand, Christine H Wang, Carrie Tully, Lauren Clary, Katherine Gallagher, Fran Cogen, Lefkothea Karaviti, Maureen Monaghan, Marisa E Hilliard |
|---|---|
| Rok vydání: | 2023 |
| Předmět: | |
| Zdroj: | Journal of Pediatric Psychology. 48:490-501 |
| ISSN: | 1465-735X 0146-8693 |
| Popis: | Objective A central part of family adjustment to a new diagnosis of type 1 diabetes (T1D) is integrating T1D management into the child’s school/daycare. This may be particularly challenging for young children who rely on adults for their diabetes management. This study aimed to describe parent experiences with school/daycare during the first 1.5 years following a young child’s T1D diagnosis. Methods As part of a randomized controlled trial of a behavioral intervention, 157 parents of young children with new-onset ( Results While most children were enrolled in school/daycare at all time points, over 50% of parents endorsed that T1D affected their child’s enrollment, rejection, or removal from school/daycare at 9 or 15 months. We generated five themes related to parents’ school/daycare experiences: Child factors, Parent factors, School/Daycare factors, Cooperation between Parents and Staff, and Socio-historical factors. Parents of younger children and those with lower subjective socioeconomic status were significantly more likely to endorse challenges with school/daycare enrollment. Conclusions School/daycare settings present challenges for parents of young children with T1D. Changes may need to occur across contexts to support early childhood education, including advocacy resources for parents to navigate school policies, increased training for school staff, and healthcare team outreach initiatives to parents and schools. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|