Psychosocial functioning in Barth syndrome: Assessment of individual and parental adjustment
| Autor: | Eric A. Storch, Amanda Collier, Carly Johnco, Brittney F. Dane, Marni L. Jacob |
|---|---|
| Rok vydání: | 2015 |
| Předmět: |
medicine.medical_specialty
education.field_of_study Coping (psychology) Younger age 05 social sciences Population Genetic disorder Barth syndrome medicine.disease Psychological correlates 03 medical and health sciences Clinical Psychology 0302 clinical medicine 030225 pediatrics Pediatrics Perinatology and Child Health Developmental and Educational Psychology medicine Normative 0501 psychology and cognitive sciences Psychiatry Psychology education Psychosocial 050104 developmental & child psychology Clinical psychology |
| Zdroj: | Children's Health Care. 46:66-92 |
| ISSN: | 1532-6888 0273-9615 |
| Popis: | Barth syndrome is a rare, x-linked genetic disorder. Few studies have examined psychosocial functioning in this population. The current study examined the psychosocial adjustment in individuals with Barth syndrome, as well as their parents. A secondary aim was to examine demographic as well as psychological correlates and predictors of poorer adjustment in order to identify relevant areas for intervention. Individuals with Barth syndrome completed measures of psychosocial functioning, health-related quality of life, and attitudes toward their illness. Parents completed measures relating to their child’s psychosocial functioning and reported on their own psychological functioning and coping. Results indicated that the majority of individuals and parents reported normative levels of psychological functioning. Younger age was associated with poorer health-related quality of life in some domains. Increased levels of internalizing symptoms were associated with poorer psychosocial functioning in individ... |
| Databáze: | OpenAIRE |
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