Children's Participation in Genetic Prevalence Research: Influences on Enrollment and Reports of Parent Satisfaction1

Autor: Michèle M.M. Mazzocco, Karen H. Harum, Allan L. Reiss, Gwen F. Myers
Rok vydání: 1999
Předmět:
Zdroj: Journal of Applied Social Psychology. 29:2308-2327
ISSN: 1559-1816
0021-9029
DOI: 10.1111/j.1559-1816.1999.tb00112.x
Popis: The present studies were designed to evaluate methodological influences on the efficiency of genetic-screening studies, specifically when enrolling preschoolers in a prevalence study of the fragile X full mutation. The studies include replication of earlier findings with school-age children, which showed that (a) a higher enrollment rate occurred when the study was introduced to a parent by a physician (73.7%) versus by a research assistant (58.7%), and (b) parents initially undecided about participating were more likely to eventually enroll if they had completed enrollment forms at the time of recruitment, In-person recruitment led to higher enrollment rates (60%) than did recruitment by mail (36.8%). Feedback from parents indicated the importance of emphasizing the optional nature of participation in screening studies.
Databáze: OpenAIRE
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