Use and effects of patient online access to medical records in general practice through a personal health record in the Netherlands. A protocol for a mixed methods study. (Preprint)

Autor: Maria Margaretha Tjitske Vreugdenhil, Rudolf Bertijn Kool, C van Boven, WJJ Assendelft, J.A.M Kremer
Rok vydání: 2018
Popis: BACKGROUND In the Dutch healthcare system general practitioners have a central position and include in their electronic health records information from all healthcare providers who are involved with their patients. Online access to the summary record in general practice through a personal health record may increase patients’ insight into their conditions and help them to be involved in their care. OBJECTIVE We describe the protocol that we will use to investigate utilisation and effects on patient involvement experienced by patients and general practice staff of patient online access to the summary of their medical record in general practice through a personal health record. METHODS A multi-level mixed methods study in which the personal health record and online access to the summary record will be offered for six months to a random sample of 500 polypharmacy patients, 500 parents of under-fours and 500 adults who do not belong to the former two groups. At patient level a controlled before- and-after study will be conducted using surveys and concurrently qualitative data will be collected from focus groups, think-aloud observations and semi-structured interviews. At general practice staff level focus groups will be conducted at baseline and Q-methodology inquiry at the end of the study period. Main outcomes at patient level are barriers and facilitators for using the personal health record and summary record and changes in taking an active role in decision-making and management of care and medication adherence. Outcomes at general practice staff level are attitudes before and opinions after implementation of the intervention. Comparisons of patient characteristics and changes in outcomes related to patient involvement over the study period will be made between users and non-users of the intervention using chi-square tests and t-tests. Thematic content analysis of qualitative data will be done and the results will be used to interpret quantitative findings. RESULTS Results are expected to be published in 2019. CONCLUSIONS We expect that the findings of this study will be useful healthcare providers and healthcare organizations that consider introducing personal health records and online access to records or recently have done so. CLINICALTRIAL Netherlands Trial Registry NTR6395
Databáze: OpenAIRE