Parental Decision-Making in Cancer Therapy: A Long-Term Observational Study
| Autor: | Ryoko Michinobu, Masaki Yamamoto, Yoshiyuki Sakai, Takahiro Mikami, Keita Igarashi, Kotoe Iesato, Akira Takebayashi, Tsukasa Hori, Hiroyuki Tsutsumi, Takeshi Tsugawa |
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| Rok vydání: | 2023 |
| Předmět: | |
| Zdroj: | Clinical Pediatrics. :000992282211506 |
| ISSN: | 1938-2707 0009-9228 |
| DOI: | 10.1177/00099228221150606 |
| Popis: | Parental participation in shared decision-making in children’s cancer therapy is essential because parents advocate for and support their children’s wishes. However, little research has focused on this issue. We conducted a longitudinal observational study of 7 parents whose child had received their first cancer treatment. We recorded parents’ behaviors, interactions, and narratives in 1 pediatric ward and 2 outpatient clinics. The recordings were systematically conducted and thematically analyzed using variable-oriented and process-oriented modes to assess the causal relationships among phenomena. We found 4 themes describing the processes by which parents developed and participated in shared decision-making. The first 2 themes reflected the development of reciprocal parental relationships and parent-other child relationships. These 2 types of relationship generated mutual trust and a sense of solidarity among parents (the third theme). This, in turn, became the foundation for parents to share decision-making with health care professionals (the fourth theme). |
| Databáze: | OpenAIRE |
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