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What is or should be the role of consent in public health? Should the role of consent be different if the public health action involves surveillance rather than efforts to change behavior to improve health? Should either individual or community consent be required for the exercise of surveillance? If community consent is required, what constitutes the community and how might it give consent? This chapter explores these difficult questions about consent and communities. It argues that the ethical considerations of respect for persons that lie behind informed consent can be reflected in the roles of public health, groups, communities, and populations in surveillance. Reflecting such respect, however, requires careful attention to the differing ways communities may be defined, in terms of political borders, geography, groups, identities, and interests. It also requires nuanced understanding of the different ways communities develop, interrelate, and function. |
