A comparative study of unmet information needs of patients with lymphoma and CLL: North America and Europe
| Autor: | Olufunmilayo (Funmi) Bamigbola, Lorna Warwick |
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| Rok vydání: | 2022 |
| Předmět: | |
| Zdroj: | Journal of Clinical Oncology. 40:12135-12135 |
| ISSN: | 1527-7755 0732-183X |
| DOI: | 10.1200/jco.2022.40.16_suppl.12135 |
| Popis: | 12135 Background: Informed patients are consistently associated with better outcomes and overall patient experiences. However, there are still unknowns about the information needs of patients. This study uses the Lymphoma Coalition (LC) 2020 Global Patient Survey (GPS) on Lymphomas and CLL to describe the differences in the unmet information needs among patients with lymphoma and CLL in North America and Europe. Methods: Globally, 9,179 patients from 90+ countries took part in the LC 2020 GPS. The countries were grouped into regions, and the North American (NA) (n=1543) and European (EU) (n=4343) regions were used for this analysis (Table). The demographics of the regions were examined, and univariate, bivariate and multivariate analyses of questions relating to patients’ information needs, were performed in IBM SPSS v27. Results: When compared, the regions differed significantly in patients’ age distribution, lymphoma subtype, highest educational level completed, and area of residence. The top three areas of unmet information need for patients with lymphoma and CLL in both regions were: diagnosis and what it means, treatment options, and side effects from treatment. Compared to patients in the EU, patients in NA were 27% more likely to need more information about treatment options, 51% more likely to need more information about support for self-care, and 18% less likely to need more information about their diagnosis and what it means. These differences were statistically significant (Table). Patients from NA were 26% more likely to report that they had no informational needs compared to patients from EU (p=0.02) (Table). There was no significant difference between patients in both regions in their need for more information in the following areas: psychological support, support for their families, side effects from treatment and fertility (Table). Conclusions: Regardless of region, patients with lymphoma need more information about certain areas of their care than is currently provided. LC advocates for increased access to appropriate and adequate medical information for patients, and that this information be contextualized to the patient’s needs.[Table: see text] |
| Databáze: | OpenAIRE |
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