| Popis: |
BACKGROUND Women with intellectual and/or developmental disabilities (IDD) do not receive breast and cervical cancer screening at the same rates as women without IDD. Intellectual and/or developmental disabilities are diagnosed in childhood, are lifelong, and involve difficulty with adaptive behaviors and/or intellectual functioning. Native American women also experience disparities in breast and cervical cancer screening. Despite these disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. OBJECTIVE The goal of this study is to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 (WBH2) program. There are two parts to the study: 1) adaptation of the WBH2 program and 2) feasibility and acceptability testing of MHMC. METHODS Females over 18 years old who identify as Native American with IDD and their caregivers (N=30 women-caregiver dyads) are eligible for the study. Participants, who will be affiliated with 2 partnering sites in Arizona (1 rural, 1 urban), will complete pre- and post- surveys assessing knowledge, self-efficacy, and screening expectations prior to and immediately after completing the program. In addition, all participants will complete brief satisfaction surveys following each of the six educational sessions. A sub-sample of Native American women with IDD (n=12), caregivers (n=12), and community health educators (n=2) who participate in the My Health My Choice program will provide semi-structured qualitative input regarding the content, delivery, and cultural relevance of the program. RESULTS Adaptation of the culturally responsive MHMC curriculum is complete. As of November 2021, the project team has started recruitment for feasibility and the acceptability study. Pre-post-measures in cancer screening knowledge, self-efficacy, and screening expectations will explore improvements among participants. CONCLUSIONS Results from the feasibility and acceptability testing of MHMC will guide future implementation studies of the program. |
