MS-Register in Deutschland — Design und erste Ergebnisse der Pilotphase

Autor: M. Hennig, Peter Rieckmann, Uwe K. Zettl, M. Daumer, J. Bertram, R. Hollweck, Peter Flachenecker, U. Götze, M. Eulitz, Jennifer S. Haas, A. Neiss, W. Elias, S. Schimrigk, M. Pette, D. Pitschnau-Michel
Rok vydání: 2005
Předmět:
Zdroj: Der Nervenarzt. 76:967-975
ISSN: 1433-0407
0028-2804
DOI: 10.1007/s00115-005-1907-8
Popis: In the summer of 2001, a nationwide epidemiological multiple sclerosis (MS) register was initiated under the auspices of the German MS Society (DMSG). This project aimed at collecting epidemiological data on the number of patients with MS, course of the disease, and their social situation in Germany. During the 2-year pilot phase, five MS centers with various regional differences and treatment methods participated, leading to a representative selection of patients. In December 2003, standardised data sets of 3,458 MS patients were available for evaluation. After examining the quality of the data, 3,223 sets remained for further analysis. The demographics were similar to those obtained from other epidemiological studies: 72% of the patients were female, mean age was 42.9+/-11.2 years, mean disease duration 12.6+/-8.7 years, and 64% suffered from the relapsing-remitting form of the disease. The median EDSS was 3.0, and 69% of patients had an EDSS
Databáze: OpenAIRE
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