User involvement in palliative care: motivational factors for service users and professionals

Autor: David Oliviere, Merryn Gott, Neil Small, Anita Sargeant, Sheila Payne
Rok vydání: 2007
Předmět:
Zdroj: Progress in Palliative Care. 15:126-132
ISSN: 1743-291X
0969-9260
Popis: Background: Few studies shed light on what motivates or discourages patients, carers and professionals for participating in user involvement activities. Aim: To identify motivational factors that affect the engagement of service users and professionals with user-involvement activities. Methods: As part of a larger scoping study of user involvement in palliative care, 51 semistructured interviews were conducted with service users, palliative care professionals and experts to explore experiences of user-involvement initiatives. Four user-involvement programmes were also observed. Data were analysed using a thematic analysis technique. A subsequent consultation meeting with 48 service users and professionals discussed the preliminary findings. Results: User involvement has been predominantly developed through a 'top-down' professional agenda. A few highly motivated individuals, both service users and palliative care professionals, are extremely influential in starting and maintaining user involvemen...
Databáze: OpenAIRE