User involvement in palliative care: motivational factors for service users and professionals
Autor: | David Oliviere, Merryn Gott, Neil Small, Anita Sargeant, Sheila Payne |
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Rok vydání: | 2007 |
Předmět: | |
Zdroj: | Progress in Palliative Care. 15:126-132 |
ISSN: | 1743-291X 0969-9260 |
Popis: | Background: Few studies shed light on what motivates or discourages patients, carers and professionals for participating in user involvement activities. Aim: To identify motivational factors that affect the engagement of service users and professionals with user-involvement activities. Methods: As part of a larger scoping study of user involvement in palliative care, 51 semistructured interviews were conducted with service users, palliative care professionals and experts to explore experiences of user-involvement initiatives. Four user-involvement programmes were also observed. Data were analysed using a thematic analysis technique. A subsequent consultation meeting with 48 service users and professionals discussed the preliminary findings. Results: User involvement has been predominantly developed through a 'top-down' professional agenda. A few highly motivated individuals, both service users and palliative care professionals, are extremely influential in starting and maintaining user involvemen... |
Databáze: | OpenAIRE |
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