Sustaining Quality of Life of the Aged: Transplant or Mechanical Support (Sustain-It): Caregiver Perceived Burden
| Autor: | Andrew Kao, Y. Xu, S. Silvestry, Michael Petty, James K. Kirklin, S.C. Collum, K. Tekeda, A. Andrei, F.D. Pagani, Melana Yuzefpolskaya, Clyde W. Yancy, Robert L. Kormos, Allen S. Anderson, Mary Amanda Dew, Shane J. LaRue, William Cotts, Eileen Hsich, K.L. Grady, Duc Thinh Pham, Margaret Murray, Ike S. Okwuosa, Anna Warzecha, Brent C. Lampert, Salpy V. Pamboukian |
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| Rok vydání: | 2020 |
| Předmět: |
Pulmonary and Respiratory Medicine
Transplantation medicine.medical_specialty business.industry Visual analogue scale Affect (psychology) medicine.disease Logistic regression Quality of life Heart failure Cohort Physical therapy Medicine Anxiety Surgery medicine.symptom Cardiology and Cardiovascular Medicine business Destination therapy |
| Zdroj: | The Journal of Heart and Lung Transplantation. 39:S34-S35 |
| ISSN: | 1053-2498 |
| DOI: | 10.1016/j.healun.2020.01.1187 |
| Popis: | Purpose Heart transplantation (HT) and mechanical circulatory support (MCS) has improved heart failure (HF) patient (PT) outcomes; it has also led to increased caregiver (CG) responsibility pre and post-surgery. We assessed whether PT and CG factors were related to baseline CG perceived burden in 3 groups of CGs of HF PTs (60-80 years): (1) PT supported with MCS as a bridge to HT (HT BTT), (2) PT awaiting HT without MCS (HT non BTT), and (3) PT prior to MCS for destination therapy (DT MCS). Methods Between 10/1/15-12/31/18, we enrolled 302 CGs from 13 U.S. sites: 92 HT BTT, 101 HT non BTT, and 109 DT MCS. CG burden was measured with the Oberst Caregiving Burden Scale (OCBS: [1] time: higher score=more time spent on task and [2] difficulty: higher score=more difficulty of task). CGs also completed the EQ-5D-3L (Visual Analog Scale [VAS]: 0 [worst] to 100 [best] imaginable health state and 5 dimensions); STAI-State (higher score=more anxiety); PHQ-8 (score ≥10=significant depressive symptoms), and demographic/health history/impact of caregiving on own health questions. PTs completed the KCCQ-12, MoCA (measure of cognitive dysfunction) and all above measures except the OCBS. Analyses included multivariable logistic regression models in which the binary outcomes were whether individual OCBS difficulty and time scores were higher than the cohort median values of 1.20 and 2.26, respectively. Results CGs were 61.1±9.7 years, 85% spouses, 85% female, and 85% white. Overall CG difficulty was low and CG time spent was moderate. CGs who reported more difficulty on tasks perceived more impact on their own health and had more anxiety, with no differences by PT implant strategy (table). CGs with Conclusion Only CG factors, and not PT factors, were related to CG perceived burden. Understanding factors that affect CG burden may aid in preoperative advanced therapies discussions. |
| Databáze: | OpenAIRE |
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