Translation and cultural adaptation of health utilities index with application to pediatric oncology patients during neutropenia and recovery in Turkey
| Autor: | Gülnur Tokuç, Pinar Uygur Muradoglu, Elif Vagas, Perran Boran, William Furlong, John Horsman |
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| Rok vydání: | 2011 |
| Předmět: |
medicine.medical_specialty
business.industry Turkish Hematology Neutropenia medicine.disease humanities Proxy (climate) language.human_language Procedure preparation Blood cancer Oncology Pediatrics Perinatology and Child Health language Pediatric oncology Physical therapy Medicine business Health Utilities Index |
| Zdroj: | Pediatric Blood & Cancer. 56:812-817 |
| ISSN: | 1545-5009 |
| DOI: | 10.1002/pbc.22835 |
| Popis: | Background This is a report on the translation and cultural adaptation from English to Turkish languages of a standard HEALTH UTILITIES INDEX® (HUI®) questionnaire for interviewer-administration and proxy assessment of patients' health status, and its use for assessing 50 consecutive pediatric oncology patients during periods of and subsequent recovery from neutropenia. Procedure Preparation of the Turkish-language questionnaire was a collaborative effort by physician-researchers in Turkey, senior Health Utilities, Inc. staff with extensive experience in the development and translation of HUI questionnaires, and Turkish-born residents of Canada. Standard HUI questionnaires cover both HUI Mark 2 (HUI2) and HUI Mark 3 (HUI3). Results The mean improvement in overall health-related quality of life (HRQL) scores between neutropenic and non-neutropenic phases was clinically important according to both HUI2 and HUI3 instruments. Single-attribute utility scores showed clinically important size improvements between phases for HUI2 mobility, emotion, and HUI2 self-care. Significant reductions in disability rates between phases were also detected for pain (HUI2 and HUI3 rate decreases of 30%, P |
| Databáze: | OpenAIRE |
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