A-7 Improving Brain-Behavior Health in Pediatric Survivors of ECMO

Autor: Hitesh S. Sandhu, Rebekah K. H. Shappley, Christen Holder, Swati Karmarkar, Constance Poplos, Samir Shah
Rok vydání: 2021
Předmět:
Zdroj: Archives of Clinical Neuropsychology. 36:1029-1029
ISSN: 1873-5843
DOI: 10.1093/arclin/acab062.08
Popis: Objective Extracorporeal Membrane Oxygenation (ECMO) is a lifesaving measure associated with developmental delays and disabilities among survivors. While guidelines recommend follow-up care for ECMO survivors, children miss care due to the lack of standardized follow-up programs and formalized medical homes. We identified deficiencies in follow-up and developed a novel, structured program at a tertiary care children’s hospital called Standardizing Therapies after ECMO program (STEp) for ECMO survivors. Methods An IRB approved program, STEp was implemented in 2017. If consented, a STEp physician formally evaluated the patient’s post ECMO needs, ordered necessary consults, provided parental education and a letter to pediatrician describing patient’s likely long term medical needs and entered patient in a structured post-discharge follow-up program. We conducted a retrospective chart review to collect data prior to and after implementation of the program in 2017. Results There were 33 survivors in the pre-STEp period (2011–16) and 46 survivors in the STEp period (2017–2020). Consent was provided for STEp in 40 patients (87%). The referral rate improved in all necessary specialties (audiology, PT/OT, Neurology). Neuropsychology evaluation referrals improved from 42% to 58% and the timely evaluation improved from 50% to 100%. 35% of the patients evaluated by neuropsychology in the STEp period were diagnosed with a neurodevelopmental/neurocognitive disorder and thus received appropriate therapies. Conclusions Implementation of a standardized follow-up program for ECMO is feasible and can be implemented successfully. STEp demonstrates that with a structured post-ECMO follow-up program, ECMO survivors can receive appropriate neuropsychological evaluations consistently, thereby identifying potential problems and treatment options.
Databáze: OpenAIRE