Nothing About Us Without Us: Authentic participation of service recipients in system development
| Autor: | Jeana Bracey, Joy S. Kaufman, Alayna Schreier, Tim Marshall, Susan Graham |
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| Rok vydání: | 2019 |
| Předmět: |
Service (business)
System development Sociology and Political Science business.industry media_common.quotation_subject 05 social sciences 050301 education Participatory action research Nothing About Us Without Us Public relations Democracy Education Health services Data access Work (electrical) Developmental and Educational Psychology 0501 psychology and cognitive sciences Business 0503 education 050104 developmental & child psychology media_common |
| Zdroj: | Children and Youth Services Review. 100:422-427 |
| ISSN: | 0190-7409 |
| DOI: | 10.1016/j.childyouth.2019.03.029 |
| Popis: | The involvement of consumers in the planning and development of health services has been encouraged and, in some cases, mandated. This involvement is viewed by many as a democratic or ethical requirement in that consumers have a right to influence services. Connecticut has been working toward the full implementation of a children's behavioral health system of care since 1997 but has lacked the mechanisms needed for family members to have their voices heard or to be full partners at decision-making tables. This paper is a case study that highlights work that has been done to 1) gather systematic feedback from families through the use of participatory research methods; 2) increase family access to data; and, 3) build the capacity of caregivers with the goal of increasing their involvement and leadership at all levels of the system of care. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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