Shared decision-making in chronic lymphocytic leukemia: Preferences and perceptions of patients, providers, and navigators
| Autor: | Randall S. Davis, Sara J. Knight, Emily Van de Laar, Aras Acemgil, Karina I. Halilova, Monika M. Safford, Thomas W. Butler, Maria Pisu, Gabrielle B. Rocque, Pamela M. Peters, Bradford E. Jackson, Uma Borate, Amitkumar Mehta |
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| Rok vydání: | 2016 |
| Předmět: |
Cancer Research
medicine.medical_specialty business.industry Community network 030503 health policy & services media_common.quotation_subject Chronic lymphocytic leukemia Cancer medicine.disease 03 medical and health sciences 0302 clinical medicine Oncology Nursing Perception Family medicine Health care College education medicine 030212 general & internal medicine Treatment decision making 0305 other medical science business media_common |
| Zdroj: | Journal of Clinical Oncology. 34:221-221 |
| ISSN: | 1527-7755 0732-183X |
| DOI: | 10.1200/jco.2016.34.7_suppl.221 |
| Popis: | 221 Background: In recent years, new treatments for chronic lymphocytic leukemia (CLL) with excellent response rates and varying toxicity profiles have emerged. In the setting of multiple available options, shared decision-making is critical. Developing strategies to enhance shared decision-making requires better understanding of how patients and providers make treatment decisions. Methods: Patients with CLL and health care providers within the University of Alabama at Birmingham Health System Cancer Community Network were to assess how treatment decisions are made. Results: Forty-four patients with CLL completed telephone-based surveys. The median age was 69 years old. Thirty percent had completed ≤12 years of education, 20% had some college education. Seventy-three percent of patients preferred an active or shared role in decision-making (27% preferring to make decision, 23% making decision with physician input, and 45% a shared role). Only 2% of patients preferred the doctor select the treatment. Despite >50% preferring an active role, only 20.5% perceived having an active role (Table 1). Thirty-three lay patient navigators, 26 oncologists, and 28 nurses (RN)/advanced care providers (ACP) completed web-based surveys. Navigators and nurses perceived a greater patient role in decision-making than physicians, who perceived that decisions were most often shared. Conclusions: Patients and providers have differing perceptions of their roles in decision-making in CLL treatment. Patients desire higher levels of participation in decision-making than they perceive that they receive, suggesting an opportunity for education of patients and providers to improve shared decision-making. [Table: see text] |
| Databáze: | OpenAIRE |
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