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reported having a new goal among their top five goals, while 19% reported changing the order of their top five goals. During the interval from the prior assessment to 8-month follow-up, 27% reported new goals and 19% a new order; for the12-month follow-up, 26% reported new goals and 24% a new order. Cumulatively, during the first 12 months of follow-up, 50% of parents reported new goals and 22% a different order of importance, while 28% of parents had not changed their beliefs about what the most important goals were for themselves. Conclusions. Most parents of children with serious illness substantially change their beliefs of what they need to do to be a good parent over time. Implications for Research, Policy, or Practice. Decision support for parents of children with serious illness should anticipate and accommodate shifting individual beliefs about being a good parent over time. |
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