A Medical Report Feature for OSSE Rare Disease Registries

Autor: Sarah Wildenhain, Holger Storf, Jessica Vasseur, Axel Zieschank, Jens Göbel, Katharina Hohenfellner, Jannik Schaaf, Katja Schueler
Rok vydání: 2021
Předmět:
Zdroj: MIE
DOI: 10.3233/shti210356
Popis: Web-based patient registries support clinicians by providing a way to effectively store and process data. Here, we present a new feature for the open-source registry software OSSE: medical reports generated with R Markdown. As part of a rare disease research project, we describe the process from requirements assessment to the current state of technical implementation. The feature offers clinicians the possibility to download customised as well as generic reports from an OSSE rare disease registry.
Databáze: OpenAIRE