The infantilized researcher and research subject: ethics, consent and risk
Autor: | James R. Connor, Jill Owen, Simon Copland |
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Rok vydání: | 2017 |
Předmět: |
medicine.medical_specialty
Research ethics ComputingMilieux_THECOMPUTINGPROFESSION 030504 nursing Nursing ethics Normative ethics 05 social sciences 050401 social sciences methods Meta-ethics Applied ethics 03 medical and health sciences 0504 sociology History and Philosophy of Science Information ethics Law medicine Military medical ethics Engineering ethics Privacy for research participants Sociology 0305 other medical science Social Sciences (miscellaneous) |
Zdroj: | Qualitative Research. 18:400-415 |
ISSN: | 1741-3109 1468-7941 |
Popis: | Current research ethics processes, based on the mantra of privacy and institutional protection, take a paternalistic approach to research participants that leaves them open to harm. Reflecting on our own research/consultancy as a case study to illustrate the current flaws, we explore our and our subjects’ experiences within the wider political context of institutional ethical rules and the Australian NHMRC guidelines. In doing so we argue for fundamental changes to the modern research ethics processes – a system that treats participants more as research collaborators rather than victims in waiting. A complete review of ethics processes is needed to empower participants and researchers to recognize the reality of the process as co-created and negotiated. This includes changes at the top level of research administration – a shift in ethics policies and procedures as well as greater education in ethics with commensurate trust for active researchers. |
Databáze: | OpenAIRE |
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