| Popis: |
The All of Us Research Program, through the All of Us Research Hub platform’s Researcher Workbench, provides researchers and citizen scientists with access to a broad dataset of surveys, electronic health records, physical measurements, genetic data, and Fitbit device wearable data. All of Us has a goal of recruiting a minimum of one million participants and aims to capture the diversity of individuals in the United States. The All of Us Research Hub platform includes a Research Projects Directory on its website, displaying researcher-provided descriptions of each active workspace on the Researcher Workbench. Inspired by the initial work completed by All of Us investigators in 2019, these workspace descriptions were analyzed with a new methodology. Genetic, methods and validation studies, and educational research purposes were associated with disease-focused research, as compared to non-disease focused research. Of all the population categories of interest, only race and ethnicity were associated with disease-focused research. Further categorization of the disease-focused workspaces revealed the top five disease categories: cardiovascular disease, brain and mental health disorders, cancer and benign tumors, diabetes, and immunology-related conditions. Athena OHDSI catalog terms were sorted and helped classify the workspaces by each disease category. Subcategory distribution for the cancer, genetic, and cardiovascular disease-related conditions was examined as well. This framework has the potential to be used for continued longitudinal analysis of the workspaces and continued learnings regarding the importance of disease-focused research in public health. Additionally, as workspace descriptions are created at project initiation, this can provide us with a leading-edge indication of researcher interest in the All of Us Research Program data. |
