689 Children undergoing kidney transplants during the pandemic and their families feel significant fear
| Autor: | Alicia Paessler, Sheila Boyle, Stephen Marks, Nicos Kessaris, Jelena Stojanovic |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
business.industry Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) media_common.quotation_subject Computer-assisted web interviewing End stage renal disease Transplantation Feeling nervous Feeling Family medicine Pandemic Patient experience medicine business media_common |
| Zdroj: | Abstracts. |
| Popis: | BackgroundThe current SARS-CoV-2 pandemic has brought a lot of anxieties for patients with end stage renal disease particularly as they were identified as a vulnerable group. Many transplant programmes were closed and reopening brought new concerns for patients and professionals. We report patient experience on receiving a kidney transplant in childhood in our centre during the pandemic.ObjectivesThis study aims to get a better understanding of the concerns patients and families have about receiving a kidney transplant during the SARS-CoV-2 pandemic which would help professionals in their transplant programmes.The secondary outcome was to identify if these concerns were adequately addressed prior to transplant and if patients and carers felt safe care was delivered throughout their transplant experience.MethodsIn the first six months of the reopening of our transplant programme, 13 paediatric patients received a kidney transplant. An anonymous online questionnaire was sent to all patients and families who received a renal transplant. The questionnaire contained multiple choice and open-ended questions that explored how participants felt in respect to SARS-CoV-2, what concerns they had and how they found the additional safety precautions that our unit implemented during the pandemic.ResultsStudy participants included 50% parents or carers responding on behalf of a child under 12 years of age, and the remaining were children over the age of 12 years. All transplanted patients felt that all their questions were answered before the transplant and 75% felt well informed about SARS-CoV-2 and the effects it may have on transplantation. 62.5% reported feeling nervous, 37.5% were anxious, 25% scared and 12.5% felt relaxed about transplantation during the pandemic. The majority of participants reported surgical complications being their biggest fear;and two participants were worried about catching SARS-CoV-2. Other concerns that participants mentioned were regarding the recovery time and having to spend time away from loved ones. More than 87% felt that care was delivered safely in inpatient and outpatient settings, although one participant mentioned feeling vulnerable when leaving the hospital. 75% of participants found shielding easy and understood its importance before the transplant and this increased to 87.5% after the transplant. Overall, 87.5% of patients were glad to have received a kidney transplant during the pandemic with one patient reporting how difficult they found it being isolated from friends and family once they felt well after the transplant.ConclusionsReceiving a kidney transplant can be a stressful experience, particularly during a pandemic. Our results show the SARS-CoV-2 pandemic has had a significant impact on children and families with end stage renal disease with patients reporting feeling significant fear. We found that detailed counselling of patients and families about risks and addressing their concerns related to SARS-CoV-2 contributed to a good patient and family experience on transplantation during the pandemic. Further studies are needed to look into the long-term effects of the pandemic on this vulnerable group of patients and strategies in addressing the same to improve patient experience. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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