Towards a Population Health Information Research Infrastructure

Autor: P. Bogaert, N. Schutte
Rok vydání: 2021
Předmět:
Zdroj: European Journal of Public Health. 31
ISSN: 1464-360X
1101-1262
DOI: 10.1093/eurpub/ckab164.572
Popis: Issue/Problem Bringing Real World Evidence (RWE) and scientific consensus to the attention of policymakers is key in underpinning and supporting health policy decision making. Now more than ever, generating information on health and well-being of European populations as impacted by COVID-19 requires the full capacity of the European research community to generate evidence for better health system preparedness. Nevertheless, the necessary type of research input is not structurally and sufficiently available within the European research landscape. Description of the problem COVID-19 has clearly shown that a structured European mechanism to organize and share accurate information between countries is urgently needed, especially in the area of population health, to inform decision-makers, researchers and the public. Results The Population Health Information Research Infrastructure (PHIRI) offers a European mechanism for structured exchanges of population health data and information useful also in current and future epidemics or crises. The project improves population health information research at EU level, with services and tools necessary for researchers to find and access population health information data sources and to use Pan-European data for generating RWE, including an online Health Information Portal and the implementation of distributed analytical solutions to produce research outputs in a GDPR compliant, federated way. Finally, by means of EU-wide capacity building, PHIRI tackles health information inequalities. Lessons The support of exchange of knowledge and expertise across Europe is a key for driving the decision-making process, and facilitated by a European Health Information portal for COVID-19 embracing a federated infrastructure that overcomes data reuse and data sharing hindrances. This allows for a rapid and relevant policy response and analysis of knowledge gaps, while ensuring FAIR and ELSI principles.
Databáze: OpenAIRE
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