O073 Patient-reported outcome measures (PROMS) used to assess quality of life (QOL) in aortic dissection: a systematic scoping review using COSMIN methodology

Autor: R Jha, L Hanna, V Sounderajah, S Makar, R Gibbs
Rok vydání: 2023
Předmět:
Zdroj: British Journal of Surgery. 110
ISSN: 1365-2168
0007-1323
Popis: Introduction Objective: to identify and evaluate all patient reported outcome measures (PROMS) using the established Consensus-based Standard for the selection of health Measurement Instruments (COSMIN) guidelines. Methods A scoping systematic review was conducted for studies that used a PROM in aortic dissection (AD) patients according to PRISMA-Scr, using electronic databases and grey literature. Results 45 studies were found, encompassing 38 PROMs. The most common PROM utilised was the 36-Item Short-Form Survey (SF-36), used in 23 studies. The majority of the remainder PROMs however (30/38) were only utilised once in their respective studies, with no disease-specific tool identified. 6 studies further evaluated a psychometric property of 4 PROMs (PROMIS-29, SF-36, SWL and SWED-QUAL). Only 1 of these studies was a PROM validation study, with the remaining 5 only reporting on internal consistency. None of the studies assessed content validity. The methodological quality for all 6 papers was judged to be adequate or very good, however, the quality of evidence was judged to be low, with none of the PROMs having undergone a rigorous psychometric evaluation within the AD population. Conclusion This review identified severe heterogeneity in the PROMs used to assess the QOL of AD patients. These instruments are generic and lack any formal content validity evaluation. A validated dissection-specific tool for use in clinical practice is therefore required to better understand and improve QOL in this patient cohort. PROMIS-29 – Patient Reported Outcome Measure Information System SWL – Satisfaction With Life scale SWED-QUAL – Swedish Health-Related Quality of Life Scale
Databáze: OpenAIRE
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