Impact of end-stage renal disease in children on their parents

Autor: Min Hyun Cho, Hee Gyung Kang, Joo H. Lee, Ki Soo Park, Young Seo Park, Hee Sun Baek, Hae Il Cheong, Il Soo Ha, Hee Yeon Cho
Rok vydání: 2018
Předmět:
Zdroj: Nephrology. 23:764-770
ISSN: 1320-5358
DOI: 10.1111/nep.13083
Popis: Aim This study was designed to investigate the impact of pediatric end-stage renal disease (ESRD) on parents, based on the PedsQL™ Family Impact Module (FIM), and the relationship to the quality of life (QOL) of pediatric ESRD patients measured by PedsQLTM 3.0 ESRD module. Methods We performed a cross-sectional study using Korean translations of the PedsQLTM FIM and the PedsQLTM 3.0 ESRD module. In all, 79 patients were enrolled, including 47 children receiving dialysis and 32 children who underwent renal transplant. Results FIM scores, analyzed for every category according to treatment modality, were significantly lower in hemodialysis (HD) than in peritoneal dialysis (PD) or renal transplant patients. Mother's age, duration since diagnosis of ESRD and the existence of comorbidity were variables to have significant effects on FIM scores. The correlation between total FIM and QOL scores of pediatric patients were significant, in both parent-proxy and child-self report. Conclusions The PedsQL™ FIM appears to be a useful tool for the assessment of family impact on children with ESRD. Further prospective studies focused on the QOL of parents and caregivers should be performed with the goal of improving clinical outcomes for pediatric ESRD patients.
Databáze: OpenAIRE
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