Vers un consentement éclairé dynamique
| Autor: | Henri-Corto Stoeklé, Guillaume Vogt, Christian Hervé, Jean-François Deleuze |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
0301 basic medicine
business.industry Internet privacy MEDLINE Genetic data Context (language use) 06 humanities and the arts General Medicine 0603 philosophy ethics and religion General Biochemistry Genetics and Molecular Biology 03 medical and health sciences 030104 developmental biology Informed consent Confidentiality The Internet Patient treatment 060301 applied ethics Personalized medicine Psychology business |
| Zdroj: | médecine/sciences. 33:188-192 |
| ISSN: | 1958-5381 0767-0974 |
| Popis: | "Personalized medicine" or "data medicine" should make it possible to use mass data to tailor patient treatment. These data are collected from analyses of biological samples, combined with clinical data. At a time when all sorts of information are instantly available via the Internet, the protection of genetic data, in particular, raises new issues with regard to the nature, means, status and usage of these data. Solutions to these problems are required, together with a clear, unambiguous legal, moral and ethical stance, to facilitate the spatial and temporal development of personalized medicine. At the forefront of these issues is the model of informed consent, which consent that has not been modified, despite many advances in technology. Medicine is now much more dynamic, and the possibilities for the real-time exchange and sharing of information, genetic data, or even biological samples, between patients, clinicians, researchers and industrial partners, must now be considered. We describe herein the particular advantages of a so-called "dynamic" and "enriched" consent, given via electronic means, in the context of the development of personalized medicine. |
| Databáze: | OpenAIRE |
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