| Autor: |
Ana Vega, J.L. Pedreira-Massa, Fernando Larcher, R. de Lucas-Laguna, P. de Unamuno-Pérez, Rogelio González-Sarmiento, Angela Hernández-Martín, A. Torrelo-Fernández, I. Arroyo, Heiko Traupe, F. Casco |
| Rok vydání: |
2013 |
| Předmět: |
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| Zdroj: |
Actas Dermo-Sifiliográficas (English Edition). 104:877-882 |
| ISSN: |
1578-2190 |
| DOI: |
10.1016/j.adengl.2012.11.022 |
| Popis: |
On June 22, 2012 the First Symposium of Ichthyosis Experts in Spain was held at the Hospital Nino de Jesus in Madrid. It was a one-day symposium for dermatologists, pediatricians, and physicians-in-training interested in this disease, as well as for other health care professionals involved in the care of patients with ichthyosis. The aim of the meeting was to try to structure the care of ichthyosis patients in Spain. As happens in other rare diseases, because of the low prevalence of ichthyosis and the absence of designated referral centers, the number of patients treated in each center is very low and few dermatologists have any real clinical experience with this condition or know how to order diagnostic genetic tests. This article summarizes the presentations given at the symposium and is intended as a reference for anyone interested in the subject. |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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Full Text from ScienceDirect