'40 Years Is An Awful Long Time': Parents Caring For Adult Sons and Daughters With Disabilities

Autor:	Karola Dillenburger, R.A.S.O.E. Lyn McKerr
Rok vydání:	2009
Předmět:	Service (business) Family support media_common.quotation_subject medicine.disease Developmental psychology Health problems Spouse Intervention (counseling) medicine General Earth and Planetary Sciences Autism Worry Psychology Futures contract General Environmental Science media_common
Zdroj:	Behavior and Social Issues. 18:155-174
ISSN:	2376-6786 1064-9506
DOI:	10.5210/bsi.v18i1.2449
Popis:	Older people who are caring for their adult sons and daughters with disabilities are under tremendous stress because they may suffer health problems themselves; have financial problems due a lifetime of caring; may have to care on their own due to the death of their spouse; worry about the future care of their child; and may feel uncomfortable approaching professionals for help. Professionals working with these families need to take contextual pressures into consideration when planning intervention. Twenty-nine parents of 27 adults with intellectual and/or developmental disabilities (including autism) were asked about present care and service arrangements, health issues, family support, and ‘futures planning’. The research reported here identifies complex networks of relationships. Virtual absence of structured futures planning was one of the key issues. Recommendations are made for professionals working in this field.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_________::41116cba5de39722f99125d90e97ac3d https://doi.org/10.5210/bsi.v18i1.2449 Zobrazit plný text záznamu Full text from SpringerLink