Developing an eHealth intervention for cancer symptom management for rural residents
Autor: | Keri Nace Mercer, Stephanie Gilbertson-White, Dorota Bartoczszyk, Todd Papke, Chi W. Yeung |
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Rok vydání: | 2016 |
Předmět: |
Cancer Research
medicine.medical_specialty Palliative care 020205 medical informatics education Population 02 engineering and technology 03 medical and health sciences Nursing Intervention (counseling) 0202 electrical engineering electronic engineering information engineering medicine eHealth Medical diagnosis education.field_of_study 030504 nursing business.industry Stakeholder Cancer medicine.disease Focus group Oncology Family medicine 0305 other medical science business |
Zdroj: | Journal of Clinical Oncology. 34:207-207 |
ISSN: | 1527-7755 0732-183X |
Popis: | 207 Background: A disproportionate number of late-stage cancer diagnoses occur in rural residents. Paradoxically this population, with an increased need for palliative care, has minimal access to these services. As smartphone and high-speed internet connectivity reaches near universal penetrance across the country, eHealth technologies have the potential to address this palliative care access gap. Oncology Associated Symptoms and Individualized Strategies (OASIS) web-app was developed to provide tailored cancer symptom self-management support and address this gap. Methods: A two-phased, mixed-methods design was used to: (1) assess stakeholder needs and opinions on the role of eHealth technologies to manage cancer symptoms; and (2) beta test a symptom self-management web-app. Adult patients with advanced cancer and clinic staff from two rural cancer clinics were recruited. A descriptive qualitative approach was used to analyze the patient interviews and staff focus groups. Themes related to symptom management needs and the role of technology were identified. OASIS was developed to address the themes found in phase 1. OASIS consists of 57 self-management strategies for 15 cancer symptoms and a visual symptom/strategy tracker for patients to monitor their symptoms and improve their self-management skills. Results: n = 15 patients were interviewed and n = 11 staff participated in focus groups. Themes identified were “fatalistic acceptance”, “teaching self how to manage symptoms”, and “balancing information needs”. To address these themes OASIS was developed and beta-tested with n = 10 rural residents with advanced cancer. 100% of participants were able to access OASIS via their home internet connection, 80% understood how to use the web-app after one 15 min teaching session, and 50% requested access to the web-app for family to help them with their symptoms. Conclusions: Patients and staff in rural communities have significant cancer symptom management needs and are interested in using eHealth technologies to address these needs. OASIS was found to be accessible, user friendly, easily navigated, and visually appealing. Future research is needed to evaluate the feasibility and acceptability as well as the efficacy of OASIS. |
Databáze: | OpenAIRE |
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