A profile of patients with postural tachycardia syndrome and their experience of healthcare in the UK
| Autor: | E J Caldow, L M Nicholson, M Opie, LA Kavi, M Nuttall, Julia L. Newton, Da Low |
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| Rok vydání: | 2016 |
| Předmět: |
Tachycardia
medicine.medical_specialty Lightheadedness business.industry technology industry and agriculture food and beverages Orthostatic intolerance medicine.disease humanities Postural tachycardia Quality of life (healthcare) Health care medicine Physical therapy Palpitations medicine.symptom Presentation (obstetrics) Cardiology and Cardiovascular Medicine business |
| Zdroj: | British Journal of Cardiology. |
| ISSN: | 0969-6113 |
| DOI: | 10.5837/bjc.2016.010 |
| Popis: | Postural tachycardia syndrome (PoTS) is a recently recognised condition that usually affects younger women, who develop symptoms of orthostatic intolerance and a persistent tachycardia on standing upright. Healthcare professionals, patients and the national patient support group (PoTS UK) together created a survey, and the responses of 779 UK PoTS patients were analysed. The most common symptoms of PoTS at presentation were the triad of fatigue, lightheadedness and palpitations. Mobility, ability to work or attend education, and quality of life were significantly restricted. Cardiologists, followed by patients, were most likely to be the first to suggest the diagnosis of PoTS. Patients waited a mean of almost four years from presentation to obtain their diagnosis and, meantime, psychiatric mislabeling was common. Advice given to patients regarding lifestyle changes was variable, and those referred to specialist practitioners for help, found practitioners had limited knowledge about management of PoTS. Increased education of healthcare professionals and improved services for patients are recommended. |
| Databáze: | OpenAIRE |
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