Strengths, challenges, and relational processes in families of children with congenital upper limb differences

Autor:	Erin L. Kelley-Soderholm, Christine E. Murray, Thomas L. Murray
Rok vydání:	2007
Předmět:	Closeness Extended family Focus group Developmental psychology Psychiatry and Mental health Social support medicine.anatomical_structure Expression (architecture) Content analysis medicine Upper limb Psychology Applied Psychology Qualitative research
Zdroj:	Families, Systems, & Health. 25:276-292
ISSN:	1939-0602 1091-7527
DOI:	10.1037/1091-7527.25.3.276
Popis:	Congenital upper limb differences are physical health conditions in which an individual is born with abnormalities of the upper limbs (i.e., arms, hands, and/or fingers). This article presents a qualitative study about the unique strengths, challenges, and relationship processes in families of children with congenital upper limb differences. Four in-depth focus groups were conducted with parents of children with congenital upper limb differences. Content analysis procedures were used to analyze the data. The results indicated the following: (a) The strengths and resources of these families included a belief in the human universality of differences, connections with similar families, reliance on a strong social support network, and humor; (b) the challenges the families faced included managing grief-related emotions, making medical decisions, and promoting the child‘s development; and (c) family relationships were affected through the parents‘ expression of emotion, opportunities for closeness, and relationships with other family members, such as extended family and siblings.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_________::3931a1fe4064d54c06045cfe36e0d374 https://doi.org/10.1037/1091-7527.25.3.276 Zobrazit plný text záznamu