Impact of caring for children with medical complexity on parents’ employment and time

Autor: Carmen Gomez Mandic, John B. Gordon, Alison Earle, Timothy E Corden, Sarah Johaningsmeir, Dolores Acevedo-Garcia
Rok vydání: 2016
Předmět:
Zdroj: Community, Work & Family. 20:444-458
ISSN: 1469-3615
1366-8803
DOI: 10.1080/13668803.2016.1202195
Popis: Objectives: This study examined parental care of children with medical complexity (CMC) in terms of time spent providing care and impacts on employment and career.Methods: We recruited caregivers of 153 CMC in a tertiary center complex care program to participate in a cross-sectional mail survey.Results: Among 95 respondents (62% of eligible), 75% of primary caregivers and 53% of spouses experienced employment losses and one-third experienced negative career outcomes attributed to care for CMC. On weekdays during the day (6 a.m.–6 p.m.), 55% of caregivers provided care for 8 hours or more. On weekday evenings and nights, half of caregivers provided care for at least 6 hours, including 53% of caregivers who provided care from midnight to 6 a.m.; these proportions were higher on weekends. Compared to employed caregivers, non-employed caregivers reported spending more time providing care on weekdays (P = .001), but less time providing care on weekend evenings (P = .019). On weekend days and weekday e...
Databáze: OpenAIRE