The Ups and Downs of Down Syndrome: A Qualitative Study of Positive and Negative Parenting Experiences
| Autor: | Laura Farkas, Briana S. Nelson Goff, Jessica D. Cless, Ellen Bodine, Ashley Edelman, Adam W. Cless |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
030506 rehabilitation
03 medical and health sciences Down syndrome 05 social sciences medicine 0501 psychology and cognitive sciences 0305 other medical science Psychology medicine.disease Social Sciences (miscellaneous) 050104 developmental & child psychology Qualitative research Clinical psychology |
| Zdroj: | Journal of Family Issues. 40:518-539 |
| ISSN: | 1552-5481 0192-513X |
| DOI: | 10.1177/0192513x18812192 |
| Popis: | The current study sought to expand current literature by providing a comparison of the positive and negative experiences reported by parents of children with a Down syndrome (DS) diagnosis. A total of 435 participants from a national study were included in the current qualitative analysis based on responses to online survey data from two research questions asking parents to describe their most positive and most negative experiences in parenting their child with DS. Positive experiences themes included the following: impact on parents and other people, child’s achievements, social acceptance/connection, and everyday/everything/many. Negative experiences themes included medical experiences, lack of social acceptance/connection, the DS diagnosis, and the impact on parents and other people. Implications for professionals and future research are presented. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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