Illness Experiences in Women with Oral Dryness as a Result of Sjögren's Syndrome: The Patient Point of View
| Autor: | Andrea Herrera Ronda, Iris Espinoza Santander, Francisca Sabugo, Matías Ríos Erazo, Claudia Bustos Reydet, Rinie Geenen, Gonzalo Rojas-Alcayaga, Pamela Wurmann |
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| Rok vydání: | 2016 |
| Předmět: |
030203 arthritis & rheumatology
medicine.medical_specialty Nursing (miscellaneous) business.industry Rehabilitation Identity (social science) Coding (therapy) Physical Therapy Sports Therapy and Rehabilitation Social relation Grounded theory stomatognathic diseases 03 medical and health sciences Social support 0302 clinical medicine Rheumatology medicine Orthopedics and Sports Medicine Active listening 030212 general & internal medicine Chiropractics Psychiatry business Qualitative research Social influence |
| Zdroj: | Musculoskeletal Care. 14:233-242 |
| ISSN: | 1478-2189 |
| Popis: | Background Sjogren's syndrome and the associated dryness can have multiple consequences. The aim of the present qualitative study was to give an in-depth account of the life experiences of women with primary Sjogren's syndrome (pSS) and health-related behaviours, and to summarize these experiences in an integrated model. Methods Twelve women diagnosed with pSS who regularly attended the Hospital of the University of Chile participated in detailed interviews. The data were analysed using qualitative methods based on the principles of grounded theory. Results Selective coding identified three categories: illness experience, social interaction and psychological response. An integrated model was developed connecting these dynamic aspects and suggesting how they could lead to a life cycle crisis in cases of maladjustment. We found that problem-solving strategies, reconstruction of identity, acceptance and a social support may prevent this life cycle crisis. Discussion Xerostomia and other consequences of pSS can have a profound influence on daily life. However, the severity of the consequences depends on individual experiences with the illness, social influences and the psychological responses of the patient. Physicians, dentists and other healthcare professionals can help the patient by listening to their problems and exploring solutions based on a psychological approach. |
| Databáze: | OpenAIRE |
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