| Autor: |
Paola Waanders, Yvonne Zwaagstra, Linda Schippers, Loes van Dusseldorp, Yvonne Pas, Manon van Kampen, Karen Lammertsen |
| Rok vydání: |
2018 |
| Předmět: |
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| Zdroj: |
Clinical care and clinical services. |
| DOI: |
10.1136/jnnp-2018-ehdn.192 |
| Popis: |
Background PDL is a multidisciplinary care method developed in the Netherlands for patients with chronic conditions. PDL is based on patient`s wishes and focusses on stabilization and dealing with disabilities for which no recovery is possible. The method contains various care advices and techniques for care topics e.g., lying in bed, sitting, moving, eating and personal care like washing and dressing. An important aspect of PDL, while washing and dressing a patient, is not using the remaining mobility of the patient. Also the environment is adjusted e.g., care is provided by one nurse instead of two; more personal contact with the patient; and more use of tools like a transfer/turning sheet or adapted clothing. PDL can reduce pain and discomfort in patients. Caregivers notice that patients with late stage Huntington`s Disease (HD) experience pain and discomfort during washing and dressing. They also indicate that the care for these patients is physically heavy. The occupational therapist suggested to start with the PDL method. However, it is unknown whether PDL will cause less pain and discomfort in patients with late stage HD and less physical burden in caregivers. Case report One patient with late stage HD living in Atlant’s HD centre of expertise will be included. Observation and monitoring will take place during two weeks. In the first week the patient receives care as usual. In the second week PDL-trained caregivers will wash and dress the patient according to PDL. Pain and discomfort of the patient will be measured by the PACSLAC-D pain observation scale. Physical burden of the caregivers will be measured by the BORG Rating of Perceived Exertion Scale. In addition caregivers will be interviewed. Conclusions We expect that a patient with late stage HD will experience less pain and discomfort while being washed and dressed according to PDL compared to care as usual. We also expect caregivers to experience less physical burden. |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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