Caregiver survey in glioblastoma focused on cognitive dysfunction: development and results from a multicenter study
| Autor: | Trang H Au, Connor Willis, Maija Reblin, Katherine B Peters, Phioanh Leia Nghiemphu, Jennie W Taylor, Howard Colman, Adam L Cohen, David Ryan Ormond, Elizabeth C Neil, Arnab Chakravarti, Nicole Willmarth, Bea Christine Balajonda, Jyothi Menon, Junjie Ma, Hillevi Bauer, Ryan S Nelson, Malinda S Tan, Prianka Singh, Alexander Marshall, Beata Korytowsky, David Stenehjem, Diana Brixner |
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| Rok vydání: | 2023 |
| Předmět: | |
| Zdroj: | Future Oncology. 19:173-188 |
| ISSN: | 1744-8301 1479-6694 |
| DOI: | 10.2217/fon-2022-0904 |
| Popis: | Aim: To develop a cognitive dysfunction (CD) focused questionnaire to evaluate caregiver burden in glioblastoma. Materials & methods: The survey was developed from stakeholder consultations and a pilot study, and disseminated at eight US academic cancer centers. Caregivers self-reported caring for an adult with glioblastoma and CD. Results: The 89-item survey covered demographics, CD symptoms and caregiver burden domains. Among 185 caregivers, most were white, educated females and reported memory problems as the most common CD symptom. An exposure-effect was observed, with increase in number of CD symptoms significantly associated with greater caregiver burden. Conclusion: This questionnaire could guide caregiver interventions and be adapted for use longitudinally, in community cancer settings, and in patients with brain metastases. |
| Databáze: | OpenAIRE |
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