A Survey of Survival Status of 601 Hemophilia Patients in Guangdong Region during COVID-19 Pandemic: Investigation and Implications
| Autor: | Huiping Li, Xiaoqin Feng, Lei Meng, Jing Sun, Xuan Zhou, Zhuqin Liu, Yufang Xun |
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| Rok vydání: | 2020 |
| Předmět: | |
| Zdroj: | Blood. 136:21-21 |
| ISSN: | 1528-0020 0006-4971 |
| DOI: | 10.1182/blood-2020-139241 |
| Popis: | Objective:Investigation the survival status of patients with hemophilia in Guangdong during the COVID-19 pandemic, and exploring the effectiveness of coping strategies to provide some experience and inspiration for the management of rare chronic diseases such as hemophilia during public health emergencies. Methods:Retrospective analysis of the disease characteristics, lifestyle, treatment, psychological, EQ-5D life quality assessment, as well as participation and effectiveness of local response measure participation and effectiveness of 601 cases of hemophiliac patients in Guangdong area before and after the COVID-19 pandemic (October 23, 2019 to April 22, 2020). Results:The 601 patients were all males, Including 22.46% patients under 6 years old, 22.96% among 7-12 years old, 13.98% among 13-20 years old , 40.44% among 21-60 years old and 0.17% over 60 years old. Hemophilia A accounted for 86.52% (520 cases) and hemophilia B 13.48% (81 cases). There were 352 cases (58.57%) of severe hemophilia (FⅧ Conclusion:The COVID-19 epidemic had a certain impact on the condition of hemophilia patients in Guangdong. Various measures by the Guangdong Hemophilia Center and the government, especially "the online diagnosis and treatment model", and the "long prescription" medical insurance reimbursement policy has a positive effect on hemophilia patients in the region, make the disease generally controllable, and may bring long-term profound benefits for management of such rare disease in future. Disclosures No relevant conflicts of interest to declare. |
| Databáze: | OpenAIRE |
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