Prenatal screening of Down Syndrome: elaboration of an information document for pregnant women
| Autor: | Goffette, Jérôme, Flori, Marie, Lamort-Bouché, Marion, Perdrix, Corinne, Laville, Agnès, Silve, Laure, de Miscault, Jeanne, Zerbib, Yves |
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| Přispěvatelé: | Environnement Ville Société (EVS), Institut National des Sciences Appliquées de Lyon (INSA Lyon), Université de Lyon-Institut National des Sciences Appliquées (INSA)-Université de Lyon-Institut National des Sciences Appliquées (INSA)-Centre National de la Recherche Scientifique (CNRS)-École nationale supérieure d'architecture de Lyon (ENSAL)-École des Mines de Saint-Étienne (Mines Saint-Étienne MSE), Institut Mines-Télécom [Paris] (IMT)-Institut Mines-Télécom [Paris] (IMT)-École Nationale des Travaux Publics de l'État (ENTPE)-Université Jean Monnet [Saint-Étienne] (UJM)-Université Jean Moulin - Lyon 3 (UJML), Université de Lyon-Université Lumière - Lyon 2 (UL2)-École normale supérieure - Lyon (ENS Lyon), Collège universitaire de médecine générale, UFR Lyon, Sciences et Société, Historicité, Éducation et Pratiques (EA S2HEP), École normale supérieure - Lyon (ENS Lyon)-Université Claude Bernard Lyon 1 (UCBL), Université de Lyon-Université de Lyon, Goffette, Jérôme, Environnement, Ville, Société (EVS), École normale supérieure de Lyon (ENS de Lyon)-École des Mines de Saint-Étienne (Mines Saint-Étienne MSE), Institut Mines-Télécom [Paris] (IMT)-Institut Mines-Télécom [Paris] (IMT)-Université Lumière - Lyon 2 (UL2)-Université Jean Moulin - Lyon 3 (UJML), Université de Lyon-Université de Lyon-Institut National des Sciences Appliquées de Lyon (INSA Lyon), Université de Lyon-Institut National des Sciences Appliquées (INSA)-Institut National des Sciences Appliquées (INSA)-Université Jean Monnet - Saint-Étienne (UJM)-École Nationale des Travaux Publics de l'État (ENTPE)-École nationale supérieure d'architecture de Lyon (ENSAL)-Centre National de la Recherche Scientifique (CNRS), École normale supérieure de Lyon (ENS de Lyon)-Université Claude Bernard Lyon 1 (UCBL) |
| Jazyk: | angličtina |
| Rok vydání: | 2016 |
| Předmět: |
[SDV.MHEP] Life Sciences [q-bio]/Human health and pathology
[SHS.PHIL]Humanities and Social Sciences/Philosophy Prenatal screening [SDV.SP]Life Sciences [q-bio]/Pharmaceutical sciences [SDV.ETH] Life Sciences [q-bio]/Ethics [SDV.ETH]Life Sciences [q-bio]/Ethics [SDV.SP] Life Sciences [q-bio]/Pharmaceutical sciences [SHS.HISPHILSO]Humanities and Social Sciences/History Philosophy and Sociology of Sciences [SHS.PHIL] Humanities and Social Sciences/Philosophy [SDV.SPEE] Life Sciences [q-bio]/Santé publique et épidémiologie [SHS.HISPHILSO] Humanities and Social Sciences/History Philosophy and Sociology of Sciences Patient decision [SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie Down Syndrome Consultation de médecine générale ambulatoire [SDV.MHEP]Life Sciences [q-bio]/Human health and pathology |
| Zdroj: | Exercer Exercer, 2016, pp.100-105 Exercer, 2016, 125, pp.100-105 |
| ISSN: | 0998-3953 |
| Popis: | International audience; Context . All pregnant women should be informed of the possibility of a prenatal screening for Downsyndrome. The underlying reasons for performing such screening are complex and often misunderstood.We wanted to draw up an information leaflet on prenatal screening for Down syndrome, which wouldbe given to pregnant women by caregivers. The leaflet was intended to improve the understanding ofpatients on the prenatal screening for Down syndrome in order to help them making an informeddecision.Method . The drawing up of the leaflet followed the recommended methodology of the FrenchNational Authority for Health: 1) drafting of a first version and improvement threw a working groupcomposed by researchers, doctors and patients; 2) assessment of the information leaflet by caregivers;3) proofreading of the documents by linguists.Results . At the end of the first step, professionals and users prepared two documents: a leaflet for theuse of patients and a diagram for support in the consultation. In the second step, these two documentswere assessed by 27 professionals (midwives, general practitioners and obstetricians). These profession-als sub- mitted the documents to patients during consultations. Changes were made to the documents.In the third step, a team of linguists improved the use of words and sentencing without any changes inthe content.Discussion . This project allowed the creation of a leaflet providing information on Down syndromeand prenatal screening. The purposes are to inform women, and avoiding anxiety, encouragingwomen and couples to reflect on the process and raise awareness that all stages of the prenatal screen-ing involve a per- sonal choice. This document should be updated along with the development of newdiagnostic techniques, such as the sampling of circulating fetal DNA in maternal blood. |
| Databáze: | OpenAIRE |
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