Rett syndrome and the role of national parent associations within a European context

Autor:	Gillian Townend, Eric Smeets, Dick van Waardenburg, Rob van der Stel, Marielle van den Berg, Henk van Kranen, Leopold Curfs
Přispěvatelé:	Kindergeneeskunde, RS: MHeNs - R3 - Neuroscience, Klinische Genetica, Health Services Research, RS: CAPHRI School for Public Health and Primary Care, RS: GROW - Developmental Biology, Institute for Public Health Genomics, RS: GROW - R4 - Reproductive and Perinatal Medicine
Předmět:	Rett syndrome parent associations centres of expertise European policy rare diseases rare disease registries European Union
Zdroj:	Maastricht University Rare diseases and orphan drugs, 2(2), 17-26
ISSN:	2284-2543
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::6851eca6ee72a010f044e7985ae5bf18 https://cris.maastrichtuniversity.nl/en/publications/ec67a584-619a-4abd-a81f-b56e990e8cc9 Zobrazit plný text záznamu