The group medical appointment (GMA) in haemophilia and von Willebrand's disease: a new development in outpatient paediatric care

Autor: Lock, J., Bruin, A. de, Scholten, M., Joosten, M., Seesing, F.M., Beishuizen, A., De Goede-Bolder, A., Cnossen, M.H.
Přispěvatelé: Pediatrics
Rok vydání: 2012
Předmět:
Zdroj: Haemophilia, 18, 766-72
Haemophilia, 18, 766-772. Wiley-Blackwell Publishing Ltd
Haemophilia, 18, 5, pp. 766-72
ISSN: 1351-8216
Popis: Item does not contain fulltext The Group Medical Appointment (GMA) is a novel consultation form in which patients undergo individual consultations in each other's presence. To compare participants' experiences with GMA and Individual Medical Appointments (IMA), the usual standard of care, our team recently implemented the GMA for children aged 0-18 years with haemophilia or von Willebrand's disease. Participants' experiences with GMA were measured using a standardized QUOTE-questionnaire. Of 100 addressed families, 53 participated in GMA. Of these 53 families, 38 parents (72%) and 14 adolescents (82%) filled in the questionnaire about the GMA. Patients not on prophylaxis were defined as less experienced and patients on prophylaxis, as experienced. Although parents were satisfied with both GMA and IMA (median score 8.0 vs. 9.0 of 10), a significant difference was demonstrated between less experienced and experienced parents. After GMA, less experienced parents were significantly more satisfied (median score 8.0 vs. 5.0; P-value 0.006), felt more social support (82% vs. 30%; P-value 0.005) and reported additional learning effects with regard to disease and treatment (64% vs. 0%; P-value
Databáze: OpenAIRE
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