The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigour

Autor: Maine, Andrew, Brown, Micahel, Dickson, Adele, Truesdale, Maria
Jazyk: angličtina
Rok vydání: 2020
Předmět:
ISSN: 1744-6295
Popis: People with intellectual disabilities (ID) experience significant barriers to diabetes self-management (DSM), yet there remains a paucity of research within this population. An overview of the literature on people with ID and their caregivers’ experiences of living with and self-managing type 2 diabetes (T2D) is provided. Methods Meta-aggregative methods were adopted to synthesise results, and an appraisal was reported of rigour. Result A total of eight studies met the inclusion criteria and four themes were extracted: i) “Frustration over lifestyle adjustments”; ii) "Limited understanding and inadequate educational resources"; iii) “Limited training and knowledge in staff”; iv) "Potential for effective DSM with appropriate support".Conclusion Current support is inadequate to meet the needs of people with ID and their caregivers self-managing diabetes. Structured education to improve health literacy and diabetes knowledge in people with ID is required, together with training for caregivers which leads to a culture of nurturing autonomy.
Databáze: OpenAIRE