| Autor: |
Sestan, Mario, Grguric, Danica, Sedmak, Maja, Kifer, Nastasia, Frkovic, Marijan, Peric, Sanja, Potocki, Kristina, Vukojevic, Nenad, Jelusic, Marija |
| Jazyk: |
angličtina |
| Rok vydání: |
2019 |
| Předmět: |
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| Popis: |
Background: Uveitis, the most common extra- articular manifestation in juvenile idiopathic arthritis (JIA), occurs in 10-20% of patients. Although prognosis of uveitis within JIA (JIA- U) improved, complications still cause severe impairment of visual function in 25-33% of children that affects their psychophysical and psychosocial development and quality of life (QoL). Objectives: To study the QoL and it’s dimensions in children suffering from JIA-U as well as to investigate is there any difference in childhood’s and parent’s perception of disease between the group of children with JIA- U and children with JIA without uveitis. Methods: The study included 42 children with JIA and their parents. Patients were divided into two groups. The first consisted of 21 children with JIA-U and the second of 21 children with JIA and no uveitis. Both groups of patients and their parents filled the Juvenile Arthritis Multidimensional Assessment Report questionnaire (JAMAR) for monitoring and assessing the health status of children with JIA. The variables used to test differences were: QoL, functional ability, pain level, disease activity estimation, and current emotional state of the child. The significance of differences between groups of children and parents was verified by the independent-samples t-test. The Pearson correlation coefficient was used for measurement of the strength of the linear relationship between variables. Results: There were no statistically significant differences in the JIA-U group and the control group in either of the examined variables. Although there is a tendency of higher scores in children with JIA- U, which indicates their worse functioning, higher pain intensity and worse current emotional state, these differences were not statistically significant. Two groups did not differ significantly in the assessment of their own overall functional ability, which was associated with experienced pain intensity. Stronger pain intensity was associated with dysfunction (r = 0.642, p |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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