| Autor: |
Lund, Line, Ross, Lone, Petersen, Morten Aagaard, Blach, Annemette, Rosted, Elizabeth, Bollig, Georg, Juhl, Gitte Irene, Farholt, Hanne Bollerup, Winther, Helen, Laursen, Louise, Hasse, Marianne, Weensgaard, Signe, Guldin, Mai-Britt, Ewing, Gail, Grande, Gunn, Groenvold, Mogens |
| Zdroj: |
Supportive & Palliative Care; 20240101, Vol. 14 Issue: 0 pe772-e783, 12p |
| Abstrakt: |
BackgroundThe Carer Support Needs Assessment Tool intervention (CSNAT-I) has been shown to improve end-of-life care support for informal caregivers. This study investigated the impact of the CSNAT-I on caregivers of patients recently enrolled in specialised palliative care (SPC) at home in Denmark.MethodsA stepped-wedge cluster randomised controlled trial with nine clusters (ie, SPC teams). Outcome measures were collected using caregiver questionnaires at baseline (T0) and 2-week (T1) and 4-week (T2) follow-up.ResultsA total of 437 caregivers were enrolled (control group, n=255; intervention group, n=182). No intervention effect was found on the primary outcome, caregiver strain at T1 (p=0.1865). However, positive effects were found at T1 and T2 on attention to caregivers’ well-being (p<0.0001), quality of information and communication (p<0.0001), amount of information (T1: p=0.0002; T2: p<0.0001), involvement (T1: p=0.0045; T2: p<0.0001), talking about greatest burdens (p<0.0001) and assistance in managing greatest burdens (p<0.0001). The effect sizes of these differences were medium or large and seemed to increase from T1 to T2. At T1, positive effects were found on distress (p=0.0178) and home care responsibility (p=0.0024). No effect was found on the remaining outcomes.ConclusionAlthough no effect was found on caregiver strain, the CSNAT-I showed positive effects on caregiver distress, home care responsibility and key outcomes regarding caregivers’ experience of the interaction with healthcare professionals.Trial registration numberNCT03466580. |
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