| Autor: |
GroharMurray, Mary Ellen, Becker, Ann, Reilly, Sarah, Ricci, Marilyn |
| Zdroj: |
Journal of Neuroscience Nursing; June 1998, Vol. 30 Issue: 3 p191-199, 9p |
| Abstrakt: |
Fatigue is the most frequently reported symptom by myasthenia gravis MGpatients. Despite the prevalence of fatigue, treatment protocols are lacking, thus patients are left to selfmanage. The purpose of this study was to describe selfcare actions used to manage fatigue among patients with MG. A national sample N250 of MG patients responded to two structured instruments The Fatigue Survey FS, modified with permission of authors Hubsky and Sears and the Myasthenia Gravis Fatigue Scale MGFS. Both instruments were based on the concept of fatigue. Participants identified three major categories of selfmanaged actions mental interventions 76, physical interventions 78 and restsleep 80. A subset of the respondents N36 reported using aerobic exercise to attempt to relieve fatigue which is usually contradicted with MG. No significant difference in fatigue scores was found between those reporting aerobic exercise to be helpful and those not finding exercise helpful. However, those utilizing aerobic exercise reported the highest functional status categories. A question arises as to whether aerobic exercise is performed by the least ill MG patients, or aerobic exercise improves functional status. When demographic and functional status variables were associated with fatigue scores and selfcare actions, only gender and functional status were significantly correlated with fatigue score. Effective selfcare actions include stress reduction techniques, pacing all activities and increased rest and sleep. Further investigation into the role of aerobic exercise is indicated as a selfcare action for MG fatigue. |
| Databáze: |
Supplemental Index |
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