| Autor: |
Gyllén, Jenny, Rosenberg, Anna, Nyström, Alf, Forsberg, Anna, Magnusson, Gunilla |
| Zdroj: |
International Journal Of Ophthalmic Practice; February 2015, Vol. 6 Issue: 1 p23-29, 7p |
| Abstrakt: |
Purpose:The aim of this study was to improve concordance by investigating important sources of information on self-management for families of children with paediatric cataracts from the perspective of parents and ophthalmologists.Methods:This mixed methods study involved a deductive approach using a questionnaire administered to 69 families of children operated on and registered with the Swedish Pediatric Cataract Register (PECARE Sweden) in southern Sweden, as well as 30 paediatric ophthalmologists who monitored the patients on their return to the local health care facility. An inductive approach was applied through an analysis of open-ended questions on self-management. Both groups were asked about their perception of the value of strategies for providing information and the timing of this.Results:The response rate was 68% for families and 93% for ophthalmologists. Both groups agreed that ophthalmology visits were the most important source of information, followed by written and online information. Parents of children diagnosed before the age of three months were more likely to prefer written information. Content analysis revealed that a person-centred approach is important.Conclusions:Parents, particularly those whose children were diagnosed at a young age, need more and better-directed information. Promoting self-management may play a decisive role in treatment outcomes. |
| Databáze: |
Supplemental Index |
| Externí odkaz: |
|
