Strengthening subject recruitment and retention of the older Black population in Alzheimer's Disease and related dementias studies through community outreach.

Autor: White, Payton Gabrielle, Azad, Dishari Zaman, Petersen, Karyn, Browne, Laurel Y, Cedeno, Jeffrey A, Cesar, Oliver, Jean‐Louis, Girardin A, Osorio, Ricardo S, Bubu, Omonigho
Zdroj: Alzheimer's & Dementia: The Journal of the Alzheimer's Association; Dec2023 Supplement 22, Vol. 19 Issue 22, p1-2, 2p
Abstrakt: Background: Representation in dementia research is extremely important in creating effective prevention methods, interventions, and treatments across all populations (Lennon et. al 2022; Barnes 2022). One of the main goals set by the National Institute on Aging (NIA) for the years 2020‐2025, is to disseminate information to several outlets including older adult‐support organizations about research and interventions. The NYU Healthy Brain Aging and Sleep Center (HBASC) has successfully built relationships with community organizations in an effort to contribute to meeting the NIA's goal using the PEACE method. We evaluated pre‐post subject retention rate, after instigation of PEACE. Method: In 2019, HBASC began recruitment for a longitudinal study focusing on sleep and Alzheimer's Disease (AD) in healthy older Blacks (ages 60‐75 years) in the New York Metropolitan Area using community outreach/education as a method of recruitment (i.e. partnering with senior recreation centers, local churches, etc.). Study team members implemented the PEACE method in their outreach efforts. Team members practiced Patience, when accommodating organizations' needs and requests, Empathy, for the members of the communities they were working in, Appreciation, for the organizations' aid in reaching the community, Cultural competence, when planning or participating in community events, and prioritized Educating the community, on AD and other related dementias before recruitment. Result: Within the first year of recruitment, ∼77% vs. ∼23% of subjects were successfully recruited from the community favoring the PEACE method. When the PEACE method was successfully executed, the study team gained the trust of members of the community and retained ∼ 70% of subjects recruited from the community. Older Blacks trusted the HBASC study team because the PEACE method demonstrates dedication to the community. This in turn increases the likelihood of follow‐up response in longitudinal ADRD studies. Conclusion: Collaborating directly with community organizations, is an efficient method not only of recruitment, but also retention of older Black subjects in ADRD studies. Collaborations with well‐known trusted community partners can establish a strong relationship between the Black community and research. [ABSTRACT FROM AUTHOR]
Databáze: Supplemental Index