Managing the unmanageable through interdependence in adolescents living with type 1 diabetes and their parents: A constructivist grounded theory.

Autor: Farthing, Pamela, Bally, Jill M.G., Leurer, Marie Dietrich, Holtslander, Lorraine, Nour, Munier A., Rennie, Donna
Zdroj: Journal of Pediatric Nursing; Nov2022, Vol. 67, pe191-e200, 10p
Abstrakt: Management of T1D is complex and requires continuous care and monitoring that place many demands on adolescents with T1D and their parents. The purpose of this study was to explore the nature of interdependence with T1D management with adolescents and their parents. Using a constructivist grounded theory methodology, 32 open-ended interviews were conducted, transcribed, and analyzed from 11 adolescents aged 10–18 years with T1D and eight parents. The data were coded using three coding phases: initial, focused, and theroetical and this process continued until theroetical saturation was reached. The substantive theory that emerged from the data describing parents' and adolescents' main concern of Maintaining Optimal Glycemic Control was Managing the Unmanageable through Interdependence. Four related subprocesses were found: Completing T1D Tasks , Attaining Support , Balancing Independence , and Reconciling Reality. These subprocesses occurred within the context of the ever-changing, Nature of the Illness. There is a dynamic relationship associated with interdependence between adolescents with T1D and their parents that varied situationally and by age. Participants also indicated interdependence occurs or they would like it to occur, with others beyond themselves and the health-care team to others willing to be involved. Interdependence is a dynamic process and requires ongoing evaluation by health-care professionals of its function in the daily management of T1D by parents and adolescents. Additional research into of the roles of health professionals and others in promoting interdependence is needed. • T1D management demands lifestyle changes for adolescents with T1D and their parents. • The substantive theory that emerged from the data suggests how participants cope. • Interdependence in care during adolescence may be a critical in T1D management. • Interdependence should include support from outside the family. [ABSTRACT FROM AUTHOR]
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